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Poor Gavin has been getting these little bumps/rash on his skin. One nurse guessed he just has really sensitive skin because it is worse usually on the side he is laying down on. Trevor noticed last night he has some on his legs too. And it’s getting better, but when he tore his tube off his face, that of course made lots and lots of bumps on his little face. These were from before the surgery and then the three incisions for part of his surgery.
Gavin Updates
Short updates: Gavin is now on the nutrients (has lipids in it and is yellow, like mountain dew) and is pulling out his tubes very often. Luckily, he hasn’t pulled his iv out of the umbilical cord (his cord is too short and they can’t sew it in); they will be changing the iv to a pick line and it will be placed in his lower arm up through his arm to an even bigger vein by his heart. This one can stay in for 20 days, whereas the one in his umbilical cord only 10 days before changing. No results back from biopsy. Gavin is about 8 lbs now but his stomach size is going down (a good sign that his intestines are not as enlarged and bloated)! He is having an irrigation every 12 hours and he is able to have bowel movements with this, so it helps keep his intestines clear and him healthier. (An enema basically) WE talked to the surgeon this morning and he said it might be Wednesday that we have the surgery! No results back yet, but at least now we have an idea!
What we have been up to:
A little later on Thursday (after they took his biopsy) we went in and finally got to hold Gavin again!! It was so wonderful. Of course I’m bawling half the time. Then that night, Grandma Kady and Aunt Nini came in and held him a little too, and I did again also. It is so wonderful! Poor boy is just getting so hungry. They did start him on Thursday night on the more nutrients through his IV, but it doesn’t help his stomach not feel empty. It makes me wonder how it will be once we are able to feed him if he’ll quickly realize that now when he shows me he’s hungry he’ll trust that he will actually get fed or not. We’ll cross that bridge when we finally get there.
We like it when he sleeps!! This helps him not feel hungry, or at least not cry because he’s hungry.
Yesterday, we went in and after Trevor took Craig out into the hall, I got to hold him for quite a while!! It was so marvelous. I just wanted to stay there all day and just keep holding him. I sang some songs to him and he had hiccups for part of it. I lost track of time a little, but I think it was about 30-45 minutes. Meanwhile, Craig was outside in the lobby with Trevor. Craig does do pretty good back in the NICU with us, but sometimes it’s just a little stressful having him there. Gavin got really upset and crying a lot towards the end of Craig being in there and he ended up pulling out his tube that lets the air out of his stomach. So Trevor and Craig went out in the hall and the wonderful nurse fixed his tube and I was able to hold him.
It’s a little less crowded around Gavin’s bed now, for the past two days, so that helps. Craig is pretty good about playing with his train or cars, coloring, reading books and playing a little Nintendo DS. When there are fewer cribs around Gavin, Craig just plays on the floor! Of course he has to get washed up to touch Gavin again, but he’s so good. Even pretty quiet while he’s playing . . . considering how noisy and loud he LOVES to be. On Thursday night, Craig even wanted to give Gavin one of his teddy bears. (Craig not really attached to one thing but semi-attached to a couple of things, like blanket, two bears, doggy and dinosaur. He goes through phases.)
Then, last night my mom, Craig and I went back and visited for about an hour. Gavin was asleep the whole time and so we didn’t hold him, but I got to rub his arm because he was uncovered with the heat on. Craig had fallen asleep on the drive, but when I picked up my mom, I woke him a little and asked if he wanted to go home or go visit Gavin. In a sleepy little voice, he told me Gavin. The entire visit he was still pretty quiet since he was a little out of it. He just wanted to sit with Grandma Kady.
Another grandma was washing up and noticed Gavin. She commented that he was a big baby! It was funny!! She then told her daughter, “Look at that big baby!” They must have had a preemie. I told her he’s about 8 lbs and she saw the sign (his name, birth weight and birth date) and said wow, 8 lbs 10 oz! Although Gavin is still bigger than Craig was when he was born. He is a big boy and probably starving! He likes to eat. Oh well. Some day.
Random:
Our days go by too quickly! We are so tired in the morning, then I’m pumping every 2-3 hours for 15 minutes, then driving. It just flies by and before I know it, it’s midnight and I’m so tired.
I forgot how much time nursing takes. In one way, pumping takes less time. But I have to be home or at the hospital to do it, whereas nursing I could do it out in my car or other places on the go.
I have had a lot of running around to do, trying to get paperwork for maternity leave and insurance and such. It’s not fun, but has to be done. Yesterday I had a breakdown. I think I’m doing ok and then a lady tells me I need more forms from my doctor and I break down crying! She must have thought me pretty silly for crying over a paper.
Conference was wonderful! We missed the second session on Saturday, but have it recorded. But wow! There were some wonderful pieces of treasure for us. We had stake conference a little bit ago and that also had some wonderful speakers. It was a broadcast to Nevada. I wanted to mention that during our stake conference, one of the speakers mentioned that children are learning so much between the ages of 3-8 years old! And that at 3 years old, children are the most receptive! That really hit me. It helped me remember that children really do learn so much at a young age and that science can back up the church and that 8 is a good age and is correct to be the age of accountability. I loved hearing that!! I need to work to help Craig better learn, both academically and in the gospel.
During first session on Saturday, Trevor got out the laptop and showed Craig how to draw an art on the computer! He loved it!
Between conference sessions on Saturday, we went to the park and blew bubbles, kicked a ball and just had fun! It was a little cold at first, but with running around, we warmed up a little! It was so nice! We even saw a ladybug!!
Blessings!! We finally got a microwave from some wonderful people in our ward that moved to a house that already had a microwave! Plus, another wonderful person in our ward was giving away stuff to DI and let us come over real quick to see if we wanted any of it first. We ended up getting a couple of chairs for a dining table, some pics, Craig a toy and two COUCHES!!!! People are so wonderful to think of us!
This is the front room downstairs and the loft upstairs.
We were all so tired, Trevor and mom both fell asleep on the couch.
Our stake has started up men's basketball again and Trevor went to our ward's first game on thursday. it was nice, they invited families out and we were able to watch and there were other kids there for Craig to play with. i hope next time is just as fun.
well, we are doing pretty good. tomorrow, hopefully we will be able to find out some info about the HUGS program and find out whether or not we will get help with a down payment or not.
school is going kinda crazy! my kids are just very very VERY talkative! i figured out that i really need to be strict and consistent about the rules! kids need consistency and so i really need to make i give them that to help us all out.
we went and hung out with a friend of ours through trevor's work and his girlfriend on Saturday. that was nice. we tried palying some games, but we didn't know each other well enough for catch phrase (and two of the ladies speak another language and so there was a little difficulty for them explaining things in english for us) and then a LONG game of uno. we played it with drawing until you could play and we all had a handful of cards. finally we changed to draw only one card. it ended a lot sooner because of that. but it was nice and craig was pretty good too.